I’ve named this blog in honor of my mother who never hesitates to declare herself. If she announces an intention to “have a little talk” with someone, you know that the listener will have no doubts remaining about her opinion. As my daughter notes, it is always entertaining to hear Granny report that she has had a little talk with someone, but it isn’t so much fun if Granny has a little talk with you!
Ask me what you’d like to know about me that my posts don’t reveal.
Hi,
I was recently dx with pbc in Oct-I am going in for my liver biopsy this Thursday. I am 41 years ol-2 kids 12 and 7. Went on the PBCers website and found some people living over 20 years with this and still doing ok. Sorry to hear about your Dad. My Mom passed last June from lung cancer @ 61 years young.
Hope to hear from you soon
Dar
I’m 36 and waiting confirmation of a diagnosis for PBC. What is the life expectancy, typically (with treatment)? I’ve tried to find out this information but the answers (on the internet) are usually vague or misleading (based on outdated data). I have been on a waiting list to see a PBC specialist for months now (about 4).
Im 57 and was diagnosed 7 yrs ago. Have enlarged spleen and low platelet levels due to PBC. Am relocating to the Huntsville/Madison Al area and am looking for specialists that treat and are knowledgeable in regards to PBC
There are no hepatologists in Huntsville. I urge you instead to go to the Kirklin Clinic, University of Alabama in Birmingham. It is less than a two-hour drive. If that is not possible, there are two gastroenterologists with some knowledge of PBC: Dr. Dino Ferrante and Dr. Prasad Vankineni.
Best wishes.
Thanks for your response for Drs in the Huntsville area. Its a frightening thought to move to a new area and the need to find new doctors, esp for a disease that is not very common. Someone else in the Huntsville area responded to me on the PBC.org website, and she also mentioned Dr. Vankineni. We will be moving soon (next month), and I will try to get appts soon afterwards and bring my records, etc. Do you know of any PBC patients in the area that meet occasionally..would you be interested? Thanks again for the information.